I thought it might be fun to give you little insight how my day looks like.
- After getting up 7 times during the night because had to go pee, at --
- 7:30 am - startle awake, think it's 11:00 or so only to see it's 7:30 turn around slowly because of orthostatic intolerance and do not want to get dizzy while lying down.
- 8:00 am - wake up again because arm is tingling, try to go back to sleep
- 9:30 am - wake up again decide to get up. Slowly stretch limps to see if all is working. No - arms don't work. Wait till two fingers don't feel dead anymore than pick up other arm and move a bit. Feels like it could fall off any minute. Look at clock ---
- 9:50 am by now. Sit up see the room spin like you have the most horrible hangover ever. With all will power you have make the room stop. Pfew.... try to get vertical, hit the floor on your knees immediately because soles of feet give you unbearable pain. While on the ground have a serious conversation with the dog about the state of her crate. Try to get up and stumble to the bathroom. Get a glimpse at the clock, darned....
- 10:10 am - stumble through the bedroom, hit hip against sharp edge of stupid stupid stupid chest with drawers, who the hell put it there? Go to the bathroom, do usual business glad to be sitting down again for a moment. Ponder if should stay there for a while and just sit. No, better get going. Throw on bathrobe try NOT to look in the mirrow and stumble back to the bedroom. Let dog out of her crate, carefully turn around and walk to the hallway. Look at the alarm clock.
- 10:30 am - on way through the hallway hit other hip on the washer..... GRRRRRR who put it there anyway, what a horrible place for a washer. Round the corner, fall over the dog who lies down there and because the blinds are closed you didn't see her and she didn't hear you because she turned deaf. Clucth the dog and cry in her fur about the unfairness of it all. Finally arrive in the kitchen.
- 10:40 am - Greet the catz who are happy to see you but even more happy to see their breakfast. Put food in microwave for cat 1, put tuna in bowl for cat 2., give defrost turkey to cat 1 both happily snacking away. Wow, you are in awe of yourself, that went pretty well.
- 10:50 am - take Thyroid medication plus Ubiquinol + Hydrocortisone + Flavinox+ Loartedine+ Shark Oil. Drink lots of water because capsule is stuck in throat. Put the kettle on for cuppa tea. Because of the Thyroid meds you're not allowed to eat for 1 hour but it doesn't say anything about drinking.
- 11:00 am make tea, walk carefully back to hallway and office. Put tea down and suddenly remember that you forgot to let the dogs out. *sigh* have to walk back and wait till they have done their business.
- 11:10 am - Pfewwwwwww sit down and sip some tea and cry in frustration because you're already exhausted and have no clue how to get through the rest of the day.
- 11:15 am Check on email maybe something fun and nice has arrived. Hmm.. no, spam, spam, friends who are also sick and in a flare, depressing medical research news. Maybe do some online retail therapy later to balance everything out and support the US economy. ;-)
- Noon - It's time to get up and wash up and put on some clothes, it's a no-shower-day today. Can only shower 3 times a week because it's too exhausting. Try to get up and realize legs don't work properly. Do some stretching and walk step by step to bathroom.
- 12:30 PM - shoot.... forgot the washing thingies, have to go back to the linen closet. mentally curse myself for being such a fog head, does not help....
- 12:35 pm - finally start washing body parts, sit down to rest and do the other half. Brush teeth, do nose rinse, look in mirror, pat down hair. Put on deo and moisturizer, otherwise skin will feel like its about to crack. Can't breath, nose airway is blocked again, bend over to pick up towel and feel the lights go out. Come to it and check to see if I broke anything, no don't think so. Look for a something to hold onto to get up. Decide not to use the sink, might come down. Shuffle out of the bathroom and use the bed to get vertical again. While there lie down on bed to recover from fainting again and hope heart will return to normal function. Look at alarm clock dammit......
- 1:15 pm - Finally managed to get on some sweats and a shirt. Stumble back to kitchen to make toast and coffee and get all the stuff for the nebulizer. First do nebulizer stuff, messure with dropper, 1 dropper of Gluthanione and 4 with water. Sit down, get a magazine and turn on nebulizer, breath slowly, try to remove cat from magazine, breath slowly and read 2 words, remove cat from magazine again. Forget to breath out and cough, not good. Give up on magazine and get a catalog look at pictures while doing nebulizer. Done...
- 1:25 pm get toast, put on some butter, take medication that have to be taken with 'breakfast' . Turn on espresso machine, get cane and walk carefully outside to the mailbox to get newspaper.
- 1:30 pm sit in backyard with coffee, 'breakfast' and newspaper and cry some more because of now double exhaustion and constant dizziness. Throw frisbee for dog until newspaper is read and coffee is gone. Tell the dog to go pee and go back inside, frozen and exhausted and in, pain, pain, pain.
- 2:05 pm - while walking past the litter box see that it needs to be cleaned. Pick up plastic bag and sit down on the floor of the sunroom because nearly passed out again. Fsck Fsck Fsck...... I HATE this illness.
- 2:15 pm - scoop our cat waste and thank wonderful company that makes purrrrfect cat litter.
- 2:30 pm - after putting all stuff away look at the clock and realize that there will be no time to work on blog now because it's time for nap. Put the dog in her crate with a biscuit, give the catz some treats and crawl into bed. Oh God that feels good..... am exhausted. Take medication and hope for a few hours uninterrupted sleep. Wonder when suppose to eat lunch and will I be able to get up to make dinner. Feel like failure and have pity with self. Turn on positive thoughts of love and being kind to self.
- 3:00 pm - sleep..........
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