Dr. V. and I made a basic plan to at least get my immune system in good condition. Apparently my ‘reverse’ T3 thyroid isn’t good and that’s why my Thyroid isn’t functioning either. I told him my experiences with taking Thyroid meds even though they were compounded for me, they gave me chest pains, irregular heart beats and even more Orthostatic Intolerance problems. I even tried to open the capsules and divide them up in 3 and fill new capsules but that also gave me the same side effects so I stopped taking them. The pharmacist told me that if I developed cardiac problems I should stop taking them and that’s what I did, against the wishes of my GP. In fact he was angry with me.
These dr’s do not understand that the function of my heart is not something I am prepared to mess with. It’s the motor of my body, if that stops working it’s over, surely they teach them that it med school?
But dr. V told me I was precribed the wrong thyroid meds, it should have been for my reverse T3 and it wasn’t.
We agreed to start at 2.5 mg and work up to 10 mg a day. At this moment I’m at 5.0 mg. It still gives me irregular heart beat, no chest pains at this time. I’m willing to se if it improves when my body is used to it more.
My medication at the moment looks like this:
5.0 mg of TRIIODO-L-Thyronine in the morning, can’t eat for 1 hour.
1/4 or 5 mg DHEA (need to build up to 1 tab of 5mg)
with breakfast:
20 mg Hydrocortisone
10 mg Loratedine
300 mg Aplha Lipoic Acid
4000 FU Nattokinase
80,000 units Serrapeptase
6 tabs Wobenzym
500 mg Quercetin
500 mg Bromelian
5000 UI Vit. D3
6 grams Vit.C
1 caps Probiotcs
4000 mg Super EPA
100 mg Ubiquinol
2 tabs Padma Basics
Before midday rest:
20 mg Hydrocortisone
4000 FU Nattokinase
80,000 units Serrapeptase
1/4 of 5 mg DHEA
30 mg Morphine Sulfate
0.5 mg Alprazolam
before dinner:
20 mg Hydrocortisone
300 mg Aplha Lipoic Acid
4000 FU Nattokinase
80,000 units Serrapeptase
6 tabs Wobenzym
500 mg Quercetin
500 mg Bromelian
5000 UI Vit. D3
6 grams Vit.C
4000 mg Super EPA
100 mg Ubiquinol
2 tabs Padma Basics
Before sleep:
75 mg Pregnenolone(need to build up to 200 mg)
10 mg Progesterone
30 mg Morphine Sulfate
1 mg Alprazolam
All this info is probably totally uninteresting for non-ME/CFIDS people, but for those who do have this rotten illness know how important it is for me to write this down so we can compare notes.
I need to see another physician to get my HGH(growth hormone) injections prescribed. It’s expensive so we’re hoping my insurance will cover it. My growth hormone was very low, it was in the 80’s and it should be in a normal range of 200-350.
Hmm... somehow I remember that someone I knew in the Netherlands lost a bunch of weight with HGH injections. That would be a nice side effect ;-)
I just wish there was something that for a minute would take away my pain, it’s driving me insane. I’m trying all kinds of tactics like zen meditation, visualization, Kabala pain technique, spa, massage, low current massage, heat, cold, nothing helps.
Next on my list is Marijuana, I’m so lucky to live in Oregon where medical Marijuana is free. They even help you find a dr. to get you a card so you can start using it. Since I don’t smoke, a nebulizer would be great. Will have to check that out.
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These dr’s do not understand that the function of my heart is not something I am prepared to mess with. It’s the motor of my body, if that stops working it’s over, surely they teach them that it med school?
But dr. V told me I was precribed the wrong thyroid meds, it should have been for my reverse T3 and it wasn’t.
We agreed to start at 2.5 mg and work up to 10 mg a day. At this moment I’m at 5.0 mg. It still gives me irregular heart beat, no chest pains at this time. I’m willing to se if it improves when my body is used to it more.
My medication at the moment looks like this:
5.0 mg of TRIIODO-L-Thyronine in the morning, can’t eat for 1 hour.
1/4 or 5 mg DHEA (need to build up to 1 tab of 5mg)
with breakfast:
20 mg Hydrocortisone
10 mg Loratedine
300 mg Aplha Lipoic Acid
4000 FU Nattokinase
80,000 units Serrapeptase
6 tabs Wobenzym
500 mg Quercetin
500 mg Bromelian
5000 UI Vit. D3
6 grams Vit.C
1 caps Probiotcs
4000 mg Super EPA
100 mg Ubiquinol
2 tabs Padma Basics
Before midday rest:
20 mg Hydrocortisone
4000 FU Nattokinase
80,000 units Serrapeptase
1/4 of 5 mg DHEA
30 mg Morphine Sulfate
0.5 mg Alprazolam
before dinner:
20 mg Hydrocortisone
300 mg Aplha Lipoic Acid
4000 FU Nattokinase
80,000 units Serrapeptase
6 tabs Wobenzym
500 mg Quercetin
500 mg Bromelian
5000 UI Vit. D3
6 grams Vit.C
4000 mg Super EPA
100 mg Ubiquinol
2 tabs Padma Basics
Before sleep:
75 mg Pregnenolone(need to build up to 200 mg)
10 mg Progesterone
30 mg Morphine Sulfate
1 mg Alprazolam
All this info is probably totally uninteresting for non-ME/CFIDS people, but for those who do have this rotten illness know how important it is for me to write this down so we can compare notes.
I need to see another physician to get my HGH(growth hormone) injections prescribed. It’s expensive so we’re hoping my insurance will cover it. My growth hormone was very low, it was in the 80’s and it should be in a normal range of 200-350.
Hmm... somehow I remember that someone I knew in the Netherlands lost a bunch of weight with HGH injections. That would be a nice side effect ;-)
I just wish there was something that for a minute would take away my pain, it’s driving me insane. I’m trying all kinds of tactics like zen meditation, visualization, Kabala pain technique, spa, massage, low current massage, heat, cold, nothing helps.
Next on my list is Marijuana, I’m so lucky to live in Oregon where medical Marijuana is free. They even help you find a dr. to get you a card so you can start using it. Since I don’t smoke, a nebulizer would be great. Will have to check that out.
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